006 - Since John Got Sick

August 20, 2018

For anyone who has suffered a serious illness, whether personally or with a child; anyone facing the challenges of autoimmune disease; and any medical professionals who have worked to help them, Allison Greene has walked in these shoes.

I met Allison in 2013 while working on a story for the South Carolina Hospital Association advocating for the South Carolina’s Legislature to consider expanding Medicaid under the Affordable Care Act. Her son's story became a central focus of the story, one of heart, soul, trials and tribulations.

Allison has worked in healthcare communications for more than twenty-five years and currently works for a large healthcare system in the upstate of South Carolina. Allison's story has so many intersections intertwined with one basic narrative, her son John almost died. Since that moment, she has spent over years fighting and navigating a system that has employed her; not only fighting for John's life and care, but also fighting a healthcare delivery system entangled with bureaucratic and political dilemmas that a seasoned healthcare communicator can barely unwind.  

Since John Got Sick: A Quest for Survival and Faith is the story of a young man’s heroic battle to survive both the initial onslaught and the ongoing assault of a traumatic autoimmune disease and its ensuing consequences (including dialysis, disability, transplant, depression, opioid dependence, and post-traumatic stress disorder). Simultaneously, it is the story of a mother’s love and strength against daunting odds, including donating a kidney.

 

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